Today is national myositis awareness day. There are three primary types of inflammatory myositis, polymyositis (PM), dermatomyositis (DM), and inclusion body myositis (IBM). Each is a rare condition that is at least partly autoimmune. While PM and IBM mainly affect adults, DM has a bimodal distribution affecting adolescents and middle age to older adults. The symptoms can range from mild muscle pain and weakness to full immobility from muscle collapse and painful ossification of muscle tissue and skin. Both PM and DM have available therapies, but they come with significant side effects such as immune suppression and lung/liver damage. IBM has no known effective treatment and is slowly progressive over the life time of the patient. Though the conditions can be fatal, typically through lung fibrosis or pulmonary hypertension, this is rare, typically people survive normal lifespans, though a significant percentage become legally disabled.
I am lucky. I have had DM for going on my second year and my case has remained mild. Yeah, I can’t stay outside long (DM causes UV sensitivity), I can’t carry Zachary for very long without hurting, and stairs suck, but I am functional, working, and have a family you understands my bad days. Most people don’t notice the rash on my knuckles or elbows and would never guess but it is out there.
September 21st is National Myositis Awareness Day!
Reaching an accurate diagnosis of polymyositis (PM), dermatomyositis (DM), juvenile dermatomyositis (JDM) and inclusion body myositis (IBM) can be a long and frustrating process. Many are misdiagnosed for years, or remain undiagnosed.
We need your support! Please consider ‘liking’ our Facebook page at www.Facebook.com/UnderstandingMyositis
The Myositis Association (TMA) also needs your help. You can make donations at www.myositis.org as well as learn more about myositis.
Please share this around if you can!
… I really should stop sleeping/snoozing/taking a nap whenever I’m bored
shockingly, kids are sick and tired of paying hundreds of dollars for overpriced stacks of paper!!!!!! who wouldve thought!!!!!!
petition to change the pride flag to pastel colors because that shit is easier on the eyes
✞☯follow for more soft homo☯✞